Anil van der Zee ©
@AnilvanderZee · Amsterdamned · joined 14 Jun 2011
Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
10 514Followers
898Following
36 774Posts total
191KViews on collected posts
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A blog about the response of many denialist dismissive cognitive dissonance comments on social media whenever they are confronted with very severe ME in the media.
https://t.co/3qydvXhcO2
#pwme #myalgicE #millionsmissing
248 views · 11 likes
· 1 reposts · 1 replies
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"A Special Tribute to Anil van der Zee | 2026 Amsterdam ISLC-PAIS Conference"
Thanks to Fred Verdult for his talk and for organizing the honor. Thanks to @miketweetchap for the video of this special moment.
https://t.co/u7lhsgP6wB
#pwme #myalgicE #millionsmissing #severeME
1.2K views · 34 likes
· 6 reposts · 0 replies
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Teenagers and siblings Anna and Moritz have very severe ME. They lie in darkened rooms only meters apart, yet they have not seen each other for almost a year.
Watch this short heart wrenching segment from a documentary about ME.
https://t.co/qqCUftR9pO
#pwme #severeME https://
2K views · 113 likes
· 44 reposts · 3 replies
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Today it is 3 years ago that my friend Céline Corsius passed away.
Read my post about her life and passing.
Our fight for justice, unfortunately not just for better health care, continues.
Also for those who are not with us anymore.
https://t.co/UMLe8CsLaY
#pwme https://t.c
1.3K views · 80 likes
· 13 reposts · 4 replies
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Transcript: Doctors as Patients.
English and Dutch:
ENG: https://t.co/gkpsVwHv5P
NL: https://t.co/Wm8wQ7hOVm
#PWME #myalgicE #LongCovid #lyme #QVS #postsepsis #PAIZ #PAIS #IACI #IACC #MillionsMissing https://t.co/cdbHHWcnSi
223 views · 8 likes
· 3 reposts · 0 replies
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Arabic subtitles have no been included!! 🙏🙏🙏
668 views · 8 likes
· 1 reposts · 0 replies
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👆👆👆
🇩🇪🇩🇪🇩🇪 Deutsche Untertitel wurden jetzt hinzugefügt. 🇩🇪🇩🇪🇩🇪
German subtitles have now been added.
https://t.co/KyS7bVuqMT
@dg_mecfs @U2Fight_World
@TeamPostX @ungenesbar @C_Scheibenbogen @neurostingl @martinruecker @SGME_CH @oeg_mecfs @Karl_Lauterbach
#pwme https://t.co
3.8K views · 57 likes
· 20 reposts · 0 replies
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👆👆👆
🇫🇷🇫🇷 Les sous-titres en français sont maintenant disponibles. 🇫🇷🇫🇷
French subtitles have now been added.
@MillionsMissgFr https://t.co/B6eeW41tw0
331 views · 11 likes
· 2 reposts · 0 replies
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👆👆👆
🇮🇹🇮🇹🇮🇹 Ora puoi guardare il film con i sottotitoli in Italiano. 🇮🇹🇮🇹🇮🇹
You can now watch the movie with Italian subtitles!!
https://t.co/2F7VXLPZ65
Grazie mille @Giada_Da_Ros https://t.co/wEBo8SXccY
446 views · 13 likes
· 4 reposts · 0 replies
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👆👆👆
🇪🇸🇪🇸🇪🇸 Ahora se han añadido subtítulos en español!! 🇪🇸🇪🇸🇪🇸
https://t.co/OpyaJrJaEE
@AsociacionPEM @Madres12Mayo @SEMG_ES @CovidVictimas
🇪🇸🇪🇸🇪🇸 https://t.co/v5Hy3rY57L
735 views · 25 likes
· 10 reposts · 4 replies
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@AnilvanderZee You are a force Anilio! ❤️
Very curious to watch this later!
491 views · 20 likes
· 0 reposts · 0 replies
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7) #PAIS/#IACC conditions have become an even more urgent health issue since the pandemic. Their voices matter more than ever!
The film has English and Dutch subtitles.
https://t.co/CGoGytKFQc
4.3K views · 162 likes
· 34 reposts · 5 replies
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6) leave a like, drop a comment on YouTube to help boost the algorithm, and share it far and wide. This is more than a film—it's a message the world needs to hear and see!!!
Their stories will hopefully change how you think about medicine—don’t miss it. Especially now that
1.7K views · 139 likes
· 17 reposts · 1 replies
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4) amazing cameramen, a few behind-the-scenes heroes, the MDs themselves, and those from the community who shared material for the film—all volunteered their time and energy. It wasn’t easy: illness and #PEM often got in the way, but we somehow made it.
We're ((primarily)
1.7K views · 148 likes
· 15 reposts · 1 replies
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5) amateur filmmakers (and I'm definitely the biggest one!), so don’t expect a slick Hollywood production. The real professionals here are the doctors—whose powerful voices, shaped by both medical training and lived experience, definitely need to be heard.
I invite u to watch,
1.5K views · 137 likes
· 13 reposts · 1 replies
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3) radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.
This project was a true labor of love. We had zero budget. Three
1.9K views · 153 likes
· 18 reposts · 1 replies
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1) OMG we did it‼️‼️
In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands
https://t.co/XxPQ9bQxI3
165K views · 1.1K likes
· 494 reposts · 63 replies
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2) but possibly worldwide!
They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm.
They reflect on how becoming patients themselves
2.7K views · 149 likes
· 27 reposts · 3 replies
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Face aux comptes de taille comparable
7 posts des 90 derniers jours, à côté de la tranche de 10K–100K abonnés. touche moins de monde que ses pairs, mais les engage bien davantage.
Vues médianes248ce compte924médiane pour 10K–100K
Portée, %2.36%ce compte3.62%médiane pour 10K–100K
Engagement, %3.52%ce compte1.52%médiane pour 10K–100K
| Indicateur | Ce compte | Médiane pour 10K–100K | Rapport |
|---|---|---|---|
| Vues médianes par post | 248 | 924 | 0.27× |
| Portée (vues ÷ abonnés) | 2.36% | 3.62% | 0.65× |
| Taux d'engagement | 3.52% | 1.52% | 2.32× |
Autres comptes de cette tranche → Comparer avec un autre compte → Comment ces repères sont établis →
Growth & engagement
How the posts we collected actually performed: views and reaction rate post by post, what the audience did with them, and where the follower count goes.
Views per post
3895 May
4466 May
33111 May
3.8K14 May
66816 May
24318 Jul
22312 Mar
1.3K18 Sep
2K
96
4419 Sep
1.2K
24820 Sep
1
Last 14 collected posts, oldest on the left. The scale is logarithmic: one post can outrun the rest a hundred times over.
Engagement rate per post
1.54%5 May
3.81%6 May
3.93%11 May
2.06%14 May
1.50%16 May
1.23%18 Jul
4.93%12 Mar
7.50%18 Sep
8.14%
2.08%
2.27%19 Sep
3.53%
5.24%20 Sep
0.00%
Reactions — likes, reposts, replies and quotes — divided by views. Median for 10K–100K accounts is 1.52%.
What the audience does
Likes63.8%2 382 in total
Reposts19.4%724 in total
Replies2.3%87 in total
Quotes1.8%66 in total
Bookmarks12.7%472 in total
Share of every reaction we collected for this account. Replies mean argument, reposts mean endorsement, bookmarks mean the post was worth keeping.
The follower curve appears once this account has two daily snapshots — we take one a day, and this one is on its first.
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