National Organization for Rare Disorders (NORD) ✓

@RareDiseases · USA · joined 29 Oct 2009

#NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py

39 777Followers

2 892Following

20 821Posts total

2.7KViews on collected posts

Derniers posts

National Organization for Rare Disorders (NORD) ✓@RareDiseases18 Sep

NORD is proud to join #mitochondrial disease-focused organizations in recognizing World Mitochondrial Disease Week this week, Sept. 14–20! Follow along with @UMDF and @MitoAction to learn more and get involved! Check out the Global Mito Map of everyone #PuttingMitoOnTheMap and h

423 views · 1 likes · 0 reposts · 0 replies Open on X →

National Organization for Rare Disorders (NORD) ✓@RareDiseases17 Sep

One conversation can transform your work for years to come. Connect with these industry-leading rare disease #biopharma, medical device, and solutions companies at the NORD Breakthrough Summit this October. Visit https://t.co/URywirsAdr to register today. https://t.co/myh36Kdp3N

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479 views · 5 likes · 2 reposts · 0 replies Open on X →

National Organization for Rare Disorders (NORD) ✓@RareDiseases17 Sep

NORD invita a la comunidad de enfermedades raras a unirse a nosotros en "Living Rare, Living Stronger" en español virtualmente el 3 de octubre de 2026. Este evento representa una oportunidad única para conectar virtualmente con pacientes, cuidadores y defensores dentro de la htt

444 views · 0 likes · 0 reposts · 0 replies Open on X →

National Organization for Rare Disorders (NORD) ✓@RareDiseases17 Sep

Quinn is a 14-year-old living with #KleefstraSyndrome, a rare genetic disorder that causes intellectual disability, developmental delays, weak muscle tone, and distinct facial features. It's caused by a mutation or deletion of the EHMT1 gene on the Q arm of the 9th chromosome. h

742 views · 11 likes · 4 reposts · 0 replies Open on X →

National Organization for Rare Disorders (NORD) ✓@RareDiseases17 Sep

NORD was proud to go before the @FDA during its final public hearing on Prescription Drug User Fees (PDUFA). The User Fee negotiations are critical to #FDA's timely review of medical products. Patients play a critical role in the PDUFA VIII Reauthorization by engaging with the h

564 views · 3 likes · 0 reposts · 0 replies Open on X →

Face aux comptes de taille comparable

5 posts des 90 derniers jours, à côté de la tranche de 10K–100K abonnés. en dessous de ses pairs à la fois en portée et en engagement.

Vues médianes479ce compte918médiane pour 10K–100K

Portée, %1.20%ce compte3.39%médiane pour 10K–100K

Engagement, %0.53%ce compte1.53%médiane pour 10K–100K

Indicateur	Ce compte	Médiane pour 10K–100K	Rapport
Vues médianes par post	479	918	0.52×
Portée (vues ÷ abonnés)	1.20%	3.39%	0.36×
Taux d'engagement	0.53%	1.53%	0.35×

Autres comptes de cette tranche → Comparer avec un autre compte → Comment ces repères sont établis →

Growth & engagement

How the posts we collected actually performed: views and reaction rate post by post, what the audience did with them, and where the follower count goes.

Views per post

56417 Sep

742

444

479

42318 Sep

Last 5 collected posts, oldest on the left. The scale is logarithmic: one post can outrun the rest a hundred times over.

Engagement rate per post

0.53%17 Sep

2.02%

0.00%

1.46%

0.24%18 Sep

Reactions — likes, reposts, replies and quotes — divided by views. Median for 10K–100K accounts is 1.53%.

What the audience does

Likes74.1%20 in total

Reposts22.2%6 in total

Bookmarks3.7%1 in total

Share of every reaction we collected for this account. Replies mean argument, reposts mean endorsement, bookmarks mean the post was worth keeping.

The follower curve appears once this account has two daily snapshots — we take one a day, and this one is on its first.

Derniers posts

Face aux comptes de taille comparable

Growth & engagement

Views per post

Engagement rate per post

What the audience does

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