ME/CFS News

@MECFSNews · joined 02 Nov 2015

I used to post news and interesting information on ME/CFS but have retired to focus on other things.

14 329Followers

671Following

23 722Posts total

10.2KViews on collected posts

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ME/CFS News@MECFSNews3 Jun

@AlanLevinovitz mind-body approaches intentionally aim to change the illness-related beliefs of the patient. Beliefs such as "If I exceed my activity limit my symptoms are likely to worsen for some time", "I'm disabled", and "There is no treatment". 598 views · 7 likes · 2 reposts · 1 replies Open on X →

ME/CFS News@MECFSNews3 Jun

The painful truth about psychosomatic hypotheses is that patients, doctors and the public are willing to suspend rational thinking and believe in miracles when they can't cope with the negative emotions they experience when confronted with unexplained disabling illness. #mecfs 2.2K views · 120 likes · 28 reposts · 3 replies Open on X →

ME/CFS News@MECFSNews31 Mar

@MECFSNews After years of failure I've made linseed/flaxseed bread which tastes like bread! Recipe: https://t.co/uTtS66N4YK The trick is to grind the seed into powder, which is difficult because of the high oil content. I used the mill attachment included with this https://t.co/B 8 views · 0 likes · 0 reposts · 0 replies Open on X →

ME/CFS News@MECFSNews7 Aug 2025

@MECFSNews @bhanlon15 If they had the drive, they could go back out with a call for funding (crowd or otherwise) immediately on the back of the Decode results, but, will they? Or be like, ‘phew we’ve done Decode now, job done for a while’ 84 views · 3 likes · 0 reposts · 0 replies Open on X →

ME/CFS News@MECFSNews7 Aug 2025

Hi all, after DecodeME, the next big study could be SequenceME. Stay informed, and if you can, help make it real https://t.co/Kx2AyJMKd5 3K views · 93 likes · 11 reposts · 2 replies Open on X →

ME/CFS News@MECFSNews26 Oct 2024

A summary of the funded studies: 1. care and treatment needs of severely ill #MECFS patients 2. rare genetic variants 3. antibodies against the microbiota 4. mast cells 5. skeletal and heart muscle metabolism 6. glycosylation-related biomarkers 7. cerebral oxygen metabolism 2.7K views · 69 likes · 12 reposts · 0 replies Open on X →

ME/CFS News@MECFSNews24 Oct 2024

This study suggests that biological mechanisms underlying pathologic fatigue in #MECFS patients also underlie fatigue symptoms at a broader population level. https://t.co/IRxcl5hOKy https://t.co/cMUzkzrZms

1.5K views · 21 likes · 5 reposts · 0 replies Open on X →

Growth & engagement

How the posts we collected actually performed: views and reaction rate post by post, what the audience did with them, and where the follower count goes.

Views per post

1.5K24 Oct

2.7K26 Oct

3K7 Aug

831 Mar

2.2K3 Jun

598

Last 7 collected posts, oldest on the left. The scale is logarithmic: one post can outrun the rest a hundred times over.

Engagement rate per post

1.71%24 Oct

2.95%26 Oct

3.55%7 Aug

3.57%

0.00%31 Mar

6.74%3 Jun

1.67%

Reactions — likes, reposts, replies and quotes — divided by views.

What the audience does

Likes74.5%313 in total

Reposts13.8%58 in total

Replies1.4%6 in total

Bookmarks10.2%43 in total

Share of every reaction we collected for this account. Replies mean argument, reposts mean endorsement, bookmarks mean the post was worth keeping.

The follower curve appears once this account has two daily snapshots — we take one a day, and this one is on its first.

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Growth & engagement

Views per post

Engagement rate per post

What the audience does

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