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Solve ME/CFS Initiative

@PlzSolveCFS · Los Angeles, CA · joined 05 Aug 2009

Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://t.co/P6umwzCRA4

12 409Followers
3 849Following
14 867Posts total
2.9KViews on collected posts

โพสต์ล่าสุด

Family Health Centers of San Diego (FHCSD) seeks patients diagnosed with / have signs & symptoms of #LongCovid for the treatment study "LC-Revitalize." Participation spans 6 mos. w/ 8 visits (6 in-person @ a SD- based clinic). Learn more: longcovid@fhcsd.org or (619) 324-8677. h
Informational flyer for a Long COVID clinical research study by Family Health Centers of San Diego seeking adults aged 18-65 with Long COVID symptoms for a 6-month study.
283 views · 7 likes · 1 reposts · 0 replies Open on X →
@PlzSolveCFS Thank you! This chat is very relevant to this hypothesis + a plausible link to dysfunctional monocytes that Dr Maureen Hanson's group found in 2024: https://t.co/QaYKA1bGhU 18 views · 0 likes · 0 reposts · 0 replies Open on X →
ICYMI: Watch the recording of our webinar with Dr. Jay H. Chung re: his Catalyst Award-winning study of the mitochondrial stabilizer IVO-21 as a therapy for #MECFS. https://t.co/xPDmqTo6e5 #MEAwarenessHour https://t.co/eW9AP3FdBK
Portrait of Dr. Jay H. Chung from NIH and Jessica Maya, PhD, VP at Solve M.E., promoting the  recording of the Solve webinar re:  IVO-21 study on ME/CFS treatment.
692 views · 16 likes · 7 reposts · 1 replies Open on X →
Starts today at 3 pm PT / 6 pm ET! Join our webinar with Dr. Jay H. Chung (NIH), who will discuss his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. https://t.co/juY29GEfu7 https://t.co/oYVIyZyA4l
Promotional banner for a study on mitochondrial stabilizer IVO-21 treatment for ME/CFS featuring Dr. Jay H. Chung and Jessica Maya, PhD, with event date and time.
623 views · 14 likes · 2 reposts · 1 replies Open on X →
@PlzSolveCFS @RenegadeRes @BrainInflCollab As a severe ME patient, I beg you to invest your money in solid basic science instead of uncontrolled trials of treatments that have no rationale for their use in ME. We need to crack the pathology of this disease so badly and seing thi 60 views · 0 likes · 0 reposts · 1 replies Open on X →
Join our Nov. 10 webinar on the @RenegadeRes SIGNAL study. We’ll discuss how people w/ #MECFS & #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the @BrainInflCollab unhide® platform for research. Register: https://t.co/sovPVNQI24
Portraits of four Renegade Research reps who are panelists for the Nov. 10 Solve M.E. webinar on the SIGNAL study. The study lends therapeutic devices to people with ME/CFS and Long COVID at no cost for home use and collects their data for research.
751 views · 23 likes · 9 reposts · 1 replies Open on X →
Congress voted to delay thru Dec. 11 a rule that lets political appointees cancel federal grants, incl. active clinical trials, overriding the peer review process. We fought for this delay, now ask Congress to end the rule permanently: https://t.co/HA8SZG0XKu #MECFS #LongCOVID h
Announcement that the implementation of the OMB Rule is delayed until December 11, urging action to block the rule entirely.
489 views · 7 likes · 1 reposts · 0 replies Open on X →

เทียบกับบัญชีขนาดเดียวกัน

7 โพสต์จาก 90 วันที่ผ่านมา เทียบกับช่วง 10K–100K ผู้ติดตาม การเข้าถึงปกติสำหรับขนาดนี้ แต่การตอบสนองแรงกว่าส่วนใหญ่.

ยอดดูมัธยฐาน489บัญชีนี้924ค่ามัธยฐานของ 10K–100K
การเข้าถึง, %3.94%บัญชีนี้3.62%ค่ามัธยฐานของ 10K–100K
การมีส่วนร่วม, %2.73%บัญชีนี้1.52%ค่ามัธยฐานของ 10K–100K
ตัวชี้วัดบัญชีนี้ค่ามัธยฐานของ 10K–100Kอัตราส่วน
ยอดดูมัธยฐานต่อโพสต์4899240.53×
การเข้าถึง (ยอดดู ÷ ผู้ติดตาม)3.94%3.62%1.09×
อัตราการมีส่วนร่วม2.73%1.52%1.79×

บัญชีอื่นในช่วงนี้ →   เปรียบเทียบกับบัญชีอื่น →   ค่าอ้างอิงเหล่านี้คำนวณอย่างไร →

Growth & engagement

How the posts we collected actually performed: views and reaction rate post by post, what the audience did with them, and where the follower count goes.

Views per post

4892 Sep
7513 Sep
604 Sep
6238 Sep
6929 Sep
1810 Sep
28311 Sep

Last 7 collected posts, oldest on the left. The scale is logarithmic: one post can outrun the rest a hundred times over.

Engagement rate per post

1.64%2 Sep
4.39%3 Sep
1.67%4 Sep
2.73%8 Sep
3.47%9 Sep
0.00%10 Sep
2.83%11 Sep

Reactions — likes, reposts, replies and quotes — divided by views. Median for 10K–100K accounts is 1.52%.

What the audience does

Likes65.0%67 in total
Reposts19.4%20 in total
Replies3.9%4 in total
Bookmarks11.7%12 in total

Share of every reaction we collected for this account. Replies mean argument, reposts mean endorsement, bookmarks mean the post was worth keeping.

The follower curve appears once this account has two daily snapshots — we take one a day, and this one is on its first.

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