Epilepsy Action
@epilepsyaction · Leeds, UK · joined 15 Nov 2008
Epilepsy says stop. We say go.
29 823Followers
2 068Following
34 673Posts total
9.9KViews on collected posts
Latest posts
Looking for new posts…
We’re thrilled to launch a limited-edition merch range, designed with Olivia Colman herself, to celebrate #NationalDoodleDay based on her doodle. Preorder your merch today: https://t.co/rHTJA1Irqj And stay tuned… there’s so much more to come!
#OliviaColman #DoodleDay2025 https://
903 views · 12 likes
· 6 reposts · 0 replies
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0:20
5 years since the Cumberlege Report.
No redress. No justice.
Becci, Susan & Anna have a message for the government.
Watch now: https://t.co/6urRxrHd7o
Write to @wesstreeting and demand action. https://t.co/sODHKCwAdN
1.4K views · 14 likes
· 9 reposts · 5 replies
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2:07
“We need redress with respect.”
Susan trusted the system.
She was never warned about valproate’s risks.
5 years since the Cumberlege Report, still no redress.
Watch Susan’s story & write to @wesstreeting.
https://t.co/6urRxrHd7o https://t.co/0zQlRa2fdC
1.2K views · 14 likes
· 6 reposts · 1 replies
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2:07
“That medication has caused him so much harm.”
Becci’s child was harmed by valproate – and 5 years later, they’re still waiting for justice.
Watch Becci’s story on YouTube & write to @wesstreeting to demand action.
https://t.co/gO518x6cUA https://t.co/7M8af81Y5a
1.6K views · 11 likes
· 7 reposts · 1 replies
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2:08
@epilepsyaction The only reason I stayed at my job for so long is because while I did have a lot of seizures there, I also pretty much dedicated my life to it. I kept doing at least 12hrs per day unless I had a seizure. I walked out only when my boss told me I need to go home.
57 views · 0 likes
· 0 reposts · 1 replies
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@epilepsyaction @ea_smyth Pretty accepting because we have it too. 💜
143 views · 3 likes
· 0 reposts · 0 replies
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If I told you I have epilepsy… how would you react?
💜 Watch, reflect, and help normalise the conversation.
👉 Please share this video and help us change the narrative.
#EpilepsyAwareness #ChangeTheNarrative #EndTheStigma https://t.co/MWniblbQ0S
4.5K views · 47 likes
· 25 reposts · 5 replies
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1:00
Growth & engagement
How the posts we collected actually performed: views and reaction rate post by post, what the audience did with them, and where the follower count goes.
Views per post
4.5K16 Jun
143
57
1.6K3 Jul
1.2K7 Jul
1.4K8 Jul
90330 Jul
Last 7 collected posts, oldest on the left. The scale is logarithmic: one post can outrun the rest a hundred times over.
Engagement rate per post
1.79%16 Jun
2.10%
1.75%
1.27%3 Jul
1.91%7 Jul
2.10%8 Jul
1.99%30 Jul
Reactions — likes, reposts, replies and quotes — divided by views.
What the audience does
Likes54.3%101 in total
Reposts28.5%53 in total
Replies7.0%13 in total
Quotes5.4%10 in total
Bookmarks4.8%9 in total
Share of every reaction we collected for this account. Replies mean argument, reposts mean endorsement, bookmarks mean the post was worth keeping.
The follower curve appears once this account has two daily snapshots — we take one a day, and this one is on its first.
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