Epilepsy Society

@epilepsysociety · UK · joined 04 Nov 2009

Transforming lives through advocacy, research & care 💜Helpline@epilepsysociety.org.uk 01494 601 400📞Info- our website

30 209Followers

2 205Following

28 730Posts total

24.2KViews on collected posts

Latest posts

Epilepsy Society@epilepsysociety17 Sep

The #ketogenic diet is one treatment option for children or adults with #epilepsy whose seizures are not controlled with AEDs. The diet may help to reduce the number or severity of seizures and may have other positive effects. Learn more https://t.co/AnSoenL2Hb https://t.co/YsztV

614 views · 9 likes · 2 reposts · 1 replies Open on X →

Epilepsy Society@epilepsysociety16 Sep

To live full & active lives, & look after our physical & emotional wellbeing, we all need time to rest, relax & exercise. How we spend our leisure time is important to us all. Read our information about sport and leisure activities when you have #epilepsy https://t.co/GJpizsfaAG

512 views · 7 likes · 2 reposts · 0 replies Open on X →

Epilepsy Society@epilepsysociety15 Sep

Our research falls under four areas: #genomics, neuroimaging, neuropsychology & neuropathology. Explore our research into #epilepsy 👉 https://t.co/WsWGEABebP https://t.co/GMrlaGEPLI

481 views · 3 likes · 1 reposts · 0 replies Open on X →

Epilepsy Society@epilepsysociety12 Sep

On our social media platforms, we can provide information about epilepsy to help support your decisions and choices 💜 For advice about your medication or treatment, always get in contact with your doctor or pharmacist, or contact the emergency services if appropriate. https://t.

681 views · 7 likes · 3 reposts · 0 replies Open on X →

Epilepsy Society@epilepsysociety11 Sep

To help protect yourself against videos or gifs with flashing lights, turn off autoplay on twitter! Turn off autoplay here: https://t.co/JTzwgm1F8W https://t.co/LJS6FngnVd

758 views · 5 likes · 2 reposts · 0 replies Open on X →

Epilepsy Society@epilepsysociety10 Sep

Our video below demonstrates what may happen for someone in an atonic seizure https://t.co/BgicvNCAn2 In an atonic seizure (or ‘drop attack’) a person’s muscles suddenly relax & they become floppy. If they're standing they often fall. Read more 👉 https://t.co/fR6LereY4J 1.1K views · 6 likes · 5 reposts · 0 replies Open on X →

Epilepsy Society@epilepsysociety9 Sep

Our video shows what someone may experience during a focal aware seizure (previously called simple partial seizures). https://t.co/54BGMBaJXU They're sometimes called ‘auras’ because, for some people, they develop into another type of seizure. Learn more https://t.co/IQNu8pzicL 1.5K views · 15 likes · 8 reposts · 1 replies Open on X →

Epilepsy Society@epilepsysociety19 Jul 2024

@epilepsysociety @RishiSunak @Keir_Starmer @10DowningStreet @scullyp @kimleadbeater @Q66Suzi @dean4watford https://t.co/26hltVx75g 200 views · 1 likes · 0 reposts · 1 replies Open on X →

Epilepsy Society@epilepsysociety12 Feb 2024

You can read more about how we celebrated this landmark achievement here: https://t.co/Q3Z5AHMYwV 617 views · 3 likes · 0 reposts · 0 replies Open on X →

Epilepsy Society@epilepsysociety12 Feb 2024

On #InternationalEpilepsyDay, we celebrate law-changer, Zach! Last week we marked #ZachsLaw with Zach meeting @RishiSunak, @Keir_Starmer and taking photos at @10DowningStreet. Zach’s Law means people with epilepsy will be safer online - and trolls will be brought to justice.💜

17.8K views · 96 likes · 23 reposts · 13 replies Open on X →

Against accounts of the same size

7 posts from the last 90 days, next to the 10K–100K follower range. reaches fewer people than peers of the same size.

Median views681this account922median for 10K–100K

Reach, %2.25%this account3.42%median for 10K–100K

Engagement, %1.47%this account1.53%median for 10K–100K

Metric	This account	Median for 10K–100K	Ratio
Median views per post	681	922	0.74×
Reach (views ÷ followers)	2.25%	3.42%	0.66×
Engagement rate	1.47%	1.53%	0.96×

Others in this range → Compare with another account → How these benchmarks are built →

Growth & engagement

How the posts we collected actually performed: views and reaction rate post by post, what the audience did with them, and where the follower count goes.

Views per post

17.8K12 Feb

617

20019 Jul

1.5K9 Sep

1.1K10 Sep

75811 Sep

68112 Sep

48115 Sep

51216 Sep

61417 Sep

Last 10 collected posts, oldest on the left. The scale is logarithmic: one post can outrun the rest a hundred times over.

Engagement rate per post

0.76%12 Feb

0.49%

1.00%19 Jul

1.62%9 Sep

1.01%10 Sep

0.92%11 Sep

1.47%12 Sep

0.83%15 Sep

1.76%16 Sep

2.12%17 Sep

Reactions — likes, reposts, replies and quotes — divided by views. Median for 10K–100K accounts is 1.53%.

What the audience does

Likes67.3%152 in total

Reposts20.4%46 in total

Replies7.1%16 in total

Quotes1.8%4 in total

Bookmarks3.5%8 in total

Share of every reaction we collected for this account. Replies mean argument, reposts mean endorsement, bookmarks mean the post was worth keeping.

Followers by day

15 Sep

Daily snapshots since 15 Sep 2026; the dashed line is the starting count.